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المؤلفGrace, Sherry L
المؤلفElashie, Sana
المؤلفSadeghi, Masoumeh
المؤلفPapasavvas, Theodoros
المؤلفHashmi, Farzana
المؤلفde Melo Ghisi, Gabriela
المؤلفVargas, Jorge Lara
المؤلفAl-Hashemi, Mohammed
المؤلفTurk-Adawi, Karam
تاريخ الإتاحة2023-10-24T08:17:13Z
تاريخ النشر2023
اسم المنشورInternational Journal for Quality in Health Care
المصدرScopus
الرقم المعياري الدولي للكتاب13534505
معرّف المصادر الموحدhttp://dx.doi.org/10.1093/intqhc/mzad050
معرّف المصادر الموحدhttp://hdl.handle.net/10576/48808
الملخصThe International Council of Cardiovascular Prevention and Rehabilitation developed an International Cardiac Rehabilitation (CR) Registry (ICRR) to support CR programs in low-resource settings to optimize care provision and patient outcomes. This study assessed implementation of the ICRR, site data steward experience with on-boarding and data entry, and patient acceptability. Multimethod observational pilot involves (I) analysis of ICRR data from three centers (Iran, Pakistan, and Qatar) from inception to May 2022, (II) focus group with on-boarded site data stewards (also from Mexico and India), and (III) semistructured interviews with participating patients. Five hundred sixty-seven patients were entered. Based on volumes at each program, 85.6% of patients were entered in ICRR. 99.3% patients approached consented to participate. The average time to enter data at pre- and follow-up assessments by source was 6.8-12.6 min. Of 22 variables preprogram, completion was 89.5%. Among patients with any follow-up data, of four program-reported variables, completion was 99.0% in program completers and 51.5% in none; of 10 patient-reported variables, completion was 97.0% in program completers and 84.8% in none. The proportion of patients with any follow-up data was 84.8% in program completers, with 43.6% of noncompleters having any data entered other than completion status. Twelve data stewards participated in the focus group. Main themes were valuable on-boarding process, data entry, process of engaging patients, and benefits of participation. Thirteen patients were interviewed. Themes were good understanding of the registry, positive experience providing data, and value of lay summary and eagerness for annual assessment. Feasibility and data quality of ICRR were demonstrated.
راعي المشروعS.L.G. conceived the study, devised the project and the main conceptual ideas, acquired financial support, managed and coordinated the research activities planning and execution, conducted the focus group interview, conducted formal analysis and synthesis, wrote the original draft, and reviewed and edited the manuscript. K.T.-A. conceived the study, devised the project and the main conceptual ideas, acquired financial support, supervised a trainee in conducting analysis and synthesis, wrote the original draft, and reviewed and edited the manuscript. S.E. cleaned the interview transcripts, maintained research data, conducted formal analysis and synthesis, created display items (tables), and formatted the manuscript for submission. M.S., T.P., F.H., G.d.M.G., and M.A.-H. facilitated data collection and interviews and revised the manuscript critically for important intellectual content. All authors interpreted data and critically revised and approved the manuscript.
اللغةen
الناشرOxford University Press
الموضوعcardiac rehabilitation
feasibility study
pilot test
quality improvement
registry
العنوانPilot testing of the International Council of Cardiovascular Prevention and Rehabilitation Registry
النوعArticle
رقم العدد3
رقم المجلد35
dc.accessType Abstract Only


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